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MS team make life easier for patients

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Morriston-HospitalA TEAM based at Morriston Hospital has tapped into technology to allow patients to ‘attend’ clinics without leaving home.

Getting to hospital for appointments is not always easy for anyone living in rural areas – and even more so for those with multiple sclerosis.

Now the regional MS team has won a prestigious award for making access much easier through the use of smart phones and tablets.

The team may be based in Morriston but it covers the ABMU and Hywel Dda areas, looking after people living as far north as Ceredigion.

Video conferencing facilities have been used for many years to allow Morriston staff to hold clinics in Bronglais Hospital in Aberystwyth.

This was increased in 2012 with the support of the MS Society, reducing traveling time and costs for the clinicians – but with no additional benefit to patients as they still had to get to Bronglais.

Last year, with the support of a pharmaceutical company, the team piloted the use of iPads for patients to have a consultation from either their home or their place of work.

Lead MS specialist nurse Helen Owen said: “When people with MS first start on disease modifying therapy they need to be seen regularly for blood monitoring. We also need to be sure their injection sites are okay and that they are tolerating their treatment well. They are seen one month after they start, then eight weeks after that and then three months so it’s a big commitment to make. We run clinics in Bronglais Hospital and have outreach clinics in other locations but that still means the patient has to travel. If they live in rural areas the condition of the roads could make attendance difficult, then there is their disability to consider.”

The pharmaceutical company’s support meant the team was able to buy iPads, which can be used to link with the patient’s tablet or phone.

Helen said: “Patients go to their local hospital or GP to have their bloods taken. We can then use the iPads to have a chat with them. If they are having problems with their injection sites, for example, they can show us. It’s much easier for them. One patient who is in work was able to have her review using the iPad from her office so she didn’t even have to take any time off.”

The service is available to patients in both ABMU and Hywel Dda health board areas. Surveys have confirmed they were all either satisfied or very satisfied with their experience.

Nicola Jones, from Llanelli, said: “It was great to not have the hassle of driving to clinic and find parking. Also, I had my consultation while I was at work so there was very little down time.”

The MS team has now won the best poster award at the national MS Trust Conference for its work developing the iPad clinics.

Dr Owen Pearson, consultant neurologist and clinical lead, said: “This is an important advance in developing both a patient centred and responsive service, as well as improving efficacy. The recent MS society report My MS, My Needs raised the difficulties people with MS living in rural areas face in accessing specialist services. The introduction of modern technology into clinical practice has improved this access.”

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Further delay to Universal Credit in Ceredigion

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BEN LAKE MP for Ceredigion has expressed his concerns following a recent announcement by the Department for Work and Pensions (DWP) that the roll-out of the government’s controversial benefit payment, Universal Credit, will be fully rolled-out across Ceredigion in December 2018.

The payment, which is set to replace longstanding benefits such as Income Support, ESA and Working Tax Credits, had initially been set to become active in Ceredigion in September 2018, however recent documentation shows the date has now been moved back to December 2018.

Ben Lake MP has expressed his concern that a roll-out in December 2018 will hit families and vulnerable people at the most difficult time of year.

Ben Lake MP said: “I welcome the news that the UK Government have decided to delay the roll-out of Universal Credit in Ceredigion, I hope that this will allow the Government an opportunity to address and resolve many of the well-publicised issues associated with the payment. There have already been significant problems with the roll-out of the new regime in other areas, however, the proposed timing of December for its roll-out in Ceredigion is particularly problematic.

“With the Christmas celebrations, cold weather, and lengthy holiday periods, December can often be a difficult month financially for many families and individuals. I have significant concerns therefore that the full introduction of Universal Credit in Ceredigion will not only see claimants put under additional financial strain, but that it will coincide with a period when many of the support services available will be disrupted due to the festive holidays.”

“I have since written to the Department of Work and Pensions expressing such concerns.”

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Share experiences of sexual harassment to help police

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PEOPLE who have been subject to sexual harassment are encouraged to share their experiences to help understand the scale of the problem in communities across Wales.

Dyfed-Powys Police is taking part in a country-wide campaign, which urges anyone who has been subject to sexual harassment to say when and where the incident took place, as well as how it made them feel, anonymously through an online survey.

The results will be used to challenge and change the culture of misogyny and sexual harassment, so people can feel safe to live their lives without fear of harassment.

Dyfed-Powys Police Assistant Chief Constable Richard Lewis said: “Sexual harassment is simply unacceptable – it doesn’t matter who it comes from or where it happens, it should not be tolerated by anyone in society.

“We are committed to making sure everybody feels safe in their community, and has the freedom to make life choices without fear of sexual harassment. We want people to be able to access every area of society with confidence, from sports facilities and workplaces, to public transport or pubs and clubs.

“By taking part in this survey, you will help us to understand the scale of the problem in communities across Dyfed-Powys Police, which will enable us to listen to those affected by sexual harassment and to make a real difference in the future.”

To take part in the survey, visit https://www.surveymonkey.co.uk/r/SWPCOM

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Proposed salmon byelaws to be postponed until 2019

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NEW fishing byelaws have been proposed which will make it mandatory for fishermen to release all salmon caught in Welsh rivers.

The procedures for introducing new byelaws are protracted and Natural Resources Wales wishes to avoid uncertainty for fishermen by delaying implementation of approved new measures until the 2019 fishing season.

The proposed all Wales byelaws, which include restrictions on fishing methods to help the survival of released fish and reduced net fishing seasons, are currently being considered by Welsh Government.

Dave Mee, Senior Fisheries Advisor for NRW, said: “At the moment timescales for a decision are uncertain, so we are proposing that introduction of any new measures should be postponed until the beginning of the 2019 rod and net seasons.

“We hope this will help clarify the situation for anglers, netsmen, fishery owners and clubs and associations.”

Welsh salmon stocks remain in a perilous condition. Although the mandatory catch and release proposals have proved unpopular with anglers, NRW firmly believes that they, along with other measures such as tackling agricultural pollution, improving water quality and managing the potential threats from predators are vital for the future survival of these iconic fish.

Peter Gough, Principal Fisheries Advisor for NRW added: “This delay is a pragmatic solution to resolving current uncertainty.

“However, it is important to note that this does not mean there will be further debate on the subject as NRW has concluded its position and the case for further controls has been made and presented to Welsh Government and it remains unchanged.

“Protection of the breeding resources of these wonderful fish is a fundamental part of our work to manage this important natural resource sustainably.”

This season, fishermen are again being asked by NRW to practice full restraint and ensure conservation of fish stocks by voluntarily releasing all the salmon they catch in 2018.

Dave explained: “Our salmon stocks are in serious trouble and have fallen to historically low levels and the same is true of about half of our sea trout stocks.

“Neither species can sustain uncontrolled killing of fish and so we are again asking all anglers to release all of their salmon.

“Most anglers are already voluntarily releasing the fish they catch, but some are not. We feel the situation is now so serious for salmon that we must ask all anglers to help preserve as many fish as possible by returning all their salmon.

“It’s also very important to take great care of returned fish. Fishing methods and tackle should be used that ensure fish have a high probability of survival, they should always be kept in the water while unhooking to ensure they can swim away strongly.”

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