A NEW support service will soon be launched to help kidney patients deal with their condition, as part of a South Wales kidney disease sufferer’s legacy.
Being set up in Swansea this month, organisers are eager to recruit people with first-hand experience of renal disease, whether through themselves, family members or friends, to help play a crucial role in the success of the support service.
The Paul Popham Fund Befriending Service sets out to not only give new renal patients support but also to offer them a shoulder to lean on as they come to terms with their diagnosis.
Chair of the Swansea-based charity Joanne Popham said: “Being diagnosed with kidney disease is life-changing and who better to understand that than someone who has either gone through it themselves or seen a loved one go through it.
“We need to hear from people who can listen to patients’ concerns, provide advice and guide them towards other services to help them learn to live with renal failure and to lead a better quality of life.
“They might be patients or just have cared for someone with kidney problems and need to be willing to share their knowledge.”
The charity has been working to develop the befriending service alongside staff from the regional renal team, who are based at Swansea’s Morriston Hospital.
The regional renal team deal with kidney patients living anywhere from Bridgend to Fishguard and even as far north as Towyn.
As well as its dialysis unit at Morriston which sees more than 220 patients, the service also has satellite haemodialysis units in Carmarthen, Haverfordwest and Aberystwyth.
Nell Brown, Regional Renal Service Manager, said: “Once you have been diagnosed with kidney disease, it may be a life sentence, but it is not all doom and gloom and patients need to understand that. That’s why having someone they can turn to is so important.
“We are delighted to have been able to work with the Paul Popham Fund to get this service off the ground. It is an important and much needed development.”
Swansea-based father-of-four Paul Popham, for who the fund was named, received two kidney transplants before sadly losing his battle with kidney cancer back in 2012.
The fund was set up in his memory by his loved ones to support renal patients across south Wales.
Besides holding fundraising events, and even establishing its own running club, the charity supports the work of NHS dialysis wards.
Paul’s daughter Joanne said that her father’s ethos was always based on believing in yourself and living the best possible life you could with the resources available to you. Allowing kidney patients to do just that is the main aim of the fund that bears his name.
Because Paul was such a longstanding supporter of the Welsh Kidney Patients’ Association, which runs its own befriending service in the country’s capital, the fund were eager to launch something similar.
Joanne added that anyone who signs up to become a befriender will be given specialist training by a clinical psychologist and receive support from the charity, as well as from the team at the renal unit.
The charity are looking for people who can understand and empathise, as well as offer a warm and friendly attitude when a kidney patient, or their carer, shares their worries or concerns.
Joanne said: “This is about giving a patient and their family knowledge and helping empower them – it’s about being a friend to someone when they need it most.”
The befriending service will be launched at 5.30pm on Thursday June 23 at Morriston Hospital’s Education Centre.
This special event will feature guest speaker Kevin Johns, who is a long-time supporter of the renal unit and patron of the Paul Popham Fund.
Kevin will be joined by kidney patients from across South West Wales as well as representatives of the Welsh Kidney Patients’ Association and Kidney Wales Foundation.
Adjustment to Safe Zones
In August, temporary traffic orders were introduced so that Safe Zones for four Ceredigion towns could remain for up to 18 months subject to regular reviews so minor adjustments can be made.
In line with the evidence collected on the use of the towns, Ceredigion County Council feel the need to keep the safe zones in place for the time being. Aberaeron and New Quay will continue as they are.
In Cardigan the closures will change to 11am until 4:30pm Monday to Saturday. The safe zones will not be in place on a Sunday in Cardigan. These adjustments will come in to force on Sunday morning, 04 October.
In Aberystwyth, additional parking has been implemented for the disabled and blue badge holders in Chalybeate Street close to the Care Society Mobility Centre.
Further enhancements to provide better access for the disabled and blue badge holders will also continue to be explored.
Safe zones were introduced in Aberaeron, Aberystwyth, Cardigan and New Quay on 13 July to create safe and spacious areas for the public to visit and provide the confidence that social distancing can be maintained in these areas.
Safe zones will be in place until at least 01 November 2020 and reviewed fortnightly in line with the infection rate and available evidence.
More information can be seen on the safe zones web page: www.ceredigion.gov.uk/SafeZones
Our responsibility to follow the new Wales coronavirus measures in order to Keep Ceredigion Safe
The Welsh Government is bringing in new coronavirus measures to reduce the spread of the Coronavirus.
To help further prevent the spread of coronavirus, new measures were announced by the First Minister which will come into force at 6pm on Thursday, September 24, 2020:
· Hospitality businesses in Wales will have to close at 10pm and provide table service only.
· All off-licences, including supermarkets, will have to stop selling alcohol at 10pm.
We are also being asked to think carefully about making journeys: only travel where it is essential to do so. The fewer people we meet and the fewer journeys we make, the safer we all are.
The Welsh Government have also introduced the following measures:
· A new £500 payment to support people on low incomes who are asked to self-isolate if they have coronavirus;
· Strengthened regulations to ensure employers support people who need to self-isolate.
The new measures are part of a package of co-ordinated actions to control the spread of coronavirus and it is essential that we all play our part in order to keep Ceredigion safe.
These new measures are to be introduced alongside those that are already in place:
· Keep a 2m social distance from each other when out and about.
· Wash your hands regularly.
· Wear a mask in indoor public places, shops and on public transport
· Only meet 6 people indoors from your extended household (not including children 11 and under).
· Do not meet with more than 30 people outdoors.
· Work from home, wherever possible.
· Think carefully about making journeys: only travel where you need to do so. The fewer people we meet and the fewer journeys we make, the safer we all are.
We need everyone to follow the rules and guidance and to take the steps to protect them and their loved ones.
Together, we can keep Ceredigion safe.
All the latest information and advice regarding the coronavirus can be found on Ceredigion County Council’s website: www.ceredigion.gov.uk/Coronavirus. The Council’s Corporate Contact Centre number is 01545 570881.
NHS COVID-19 app launches across Wales
People are being urged to download the NHS COVID-19 app to help stop the spread of coronavirus and protect themselves and their loved ones as case numbers rise.
The app launches today [Thursday 24] after positive trials and will be a useful tool when used alongside Wales’ successful manual contact tracing system.
It will be available to those aged 16 and over, and forms a central part of the NHS Wales Test, Trace, Protect programme identifying contacts of those who have tested positive for coronavirus.
The roll-out of the app in Wales coincides with a national campaign around how people in Wales can best support the NHS Wales Test, Trace, Protect programme, including only getting a test if they are showing symptoms; self-isolating when required; and working with local contact tracers if they are contacted.
Wales’ contact tracing system – which is a publicly-run service and locally delivered – is working well and has seen a very high contract and trace rate. Latest stats show 94% of cases are being successfully contacted.
The app works by logging the amount of time you spend near other app users, and the distance between you, so it can alert you if someone you have been close to later tests positive for COVID-19 – even if you don’t know each other.
The app will advise you to self-isolate if you have been in close contact with a confirmed case. It will also enable you to check symptoms, book a test if needed and get your test results.
Wales’ Health Minister Vaughan Gething said:
“The launch of the NHS COVID-19 app is an important part of Wales’ coronavirus response, supporting the NHS Wales Test, Trace, Protect programme. The more people who download and use this app, the more it will help us to prevent the spread of COVID-19.
“We have worked closely with the app development team to ensure it works seamlessly across Wales and England, providing people with the right advice based on where they live. In Wales, the app will complement our existing contact tracing and testing services and will further support our co-ordinated response to COVID-19 at both a local and national level.
“I strongly encourage everyone in Wales to download and use the app to keep Wales safe.”
The app has been designed with user privacy in mind, so it tracks the virus, not people and uses the latest in data security technology to protect privacy. The system generates a random ID for an individual’s device, which can be exchanged between devices via Bluetooth. These unique random IDs regenerate frequently to add an extra layer of security and preserve anonymity.
The app does not hold personal information such as your name, address or date of birth, and only requires the first half of your postcode to ensure local outbreaks can be managed.
Today the UK’s major mobile network operators, including Vodafone, Three, EE and O2, Sky and Virgin, have confirmed that all in-app activity will not come out of customers’ data allowance.
In a joint statement Apple and Google said:
“We built the exposure notifications system to enable public health authorities in their efforts to develop apps to help reduce the spread of the virus while ensuring people can trust in the privacy-preserving design. We are committed to supporting the government’s effort to launch an app based on this technology.”
Whilst the app will be a major support for the contact tracing system, Welsh residents are being reminded to continue to keep Wales safe and prevent the spread of COVID-19 by:
• Always keeping a distance
• Washing hands regularly
• Working from home wherever possible
• Following local restrictions
• Following the rules about meeting people
• Staying at home if you or anyone in your extended household has symptoms.
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