A NEW support service will soon be launched to help kidney patients deal with their condition, as part of a South Wales kidney disease sufferer’s legacy.
Being set up in Swansea this month, organisers are eager to recruit people with first-hand experience of renal disease, whether through themselves, family members or friends, to help play a crucial role in the success of the support service.
The Paul Popham Fund Befriending Service sets out to not only give new renal patients support but also to offer them a shoulder to lean on as they come to terms with their diagnosis.
Chair of the Swansea-based charity Joanne Popham said: “Being diagnosed with kidney disease is life-changing and who better to understand that than someone who has either gone through it themselves or seen a loved one go through it.
“We need to hear from people who can listen to patients’ concerns, provide advice and guide them towards other services to help them learn to live with renal failure and to lead a better quality of life.
“They might be patients or just have cared for someone with kidney problems and need to be willing to share their knowledge.”
The charity has been working to develop the befriending service alongside staff from the regional renal team, who are based at Swansea’s Morriston Hospital.
The regional renal team deal with kidney patients living anywhere from Bridgend to Fishguard and even as far north as Towyn.
As well as its dialysis unit at Morriston which sees more than 220 patients, the service also has satellite haemodialysis units in Carmarthen, Haverfordwest and Aberystwyth.
Nell Brown, Regional Renal Service Manager, said: “Once you have been diagnosed with kidney disease, it may be a life sentence, but it is not all doom and gloom and patients need to understand that. That’s why having someone they can turn to is so important.
“We are delighted to have been able to work with the Paul Popham Fund to get this service off the ground. It is an important and much needed development.”
Swansea-based father-of-four Paul Popham, for who the fund was named, received two kidney transplants before sadly losing his battle with kidney cancer back in 2012.
The fund was set up in his memory by his loved ones to support renal patients across south Wales.
Besides holding fundraising events, and even establishing its own running club, the charity supports the work of NHS dialysis wards.
Paul’s daughter Joanne said that her father’s ethos was always based on believing in yourself and living the best possible life you could with the resources available to you. Allowing kidney patients to do just that is the main aim of the fund that bears his name.
Because Paul was such a longstanding supporter of the Welsh Kidney Patients’ Association, which runs its own befriending service in the country’s capital, the fund were eager to launch something similar.
Joanne added that anyone who signs up to become a befriender will be given specialist training by a clinical psychologist and receive support from the charity, as well as from the team at the renal unit.
The charity are looking for people who can understand and empathise, as well as offer a warm and friendly attitude when a kidney patient, or their carer, shares their worries or concerns.
Joanne said: “This is about giving a patient and their family knowledge and helping empower them – it’s about being a friend to someone when they need it most.”
The befriending service will be launched at 5.30pm on Thursday June 23 at Morriston Hospital’s Education Centre.
This special event will feature guest speaker Kevin Johns, who is a long-time supporter of the renal unit and patron of the Paul Popham Fund.
Kevin will be joined by kidney patients from across South West Wales as well as representatives of the Welsh Kidney Patients’ Association and Kidney Wales Foundation.
Penrhyn-coch Brownies compose song
PENRHYN-COCH Brownies were congratulated for composing a new Welsh language song recently. The workshops were part of a program of Welsh language workshops organised by Cered – Menter Iaith Ceredigion.
Following a series of workshops with the young singer, Mari Mathias from Talgarreg, the girls decided to compose a song. ‘Yn yr Haf’ was recorded with the girls singing and Mari on the guitar. All the group members received a copy of the song on CD.
Rhodri Francis, Cered’s Development Officer said: “It has been a pleasure to work with the group and we congratulate members on their masterpiece. Thanks also to the leaders for their enthusiasm in securing opportunities for the members to socialise in Welsh outside of school hours.”
Cered’s main aim is to support, influence and develop the use of the Welsh language in Ceredigion through partnership and co-operation, to establish the best possible foundation for the development of the language in the society and community.
Wendy Reynolds, leader of the Brownies unit in Penrhyn-coch said: “The experience has been amazing for the girls and they’ve had a lot of fun doing activities through the medium of Welsh.”
Follow all the news about the wider work of Cered, through liking the Facebook page @ceredmenteriaith or follow on Twitter @MICered.
For more information on Cered, phone 01545 572350 or email email@example.com.
Theatre caravan coming to Aberystwyth
THE SMALLEST cinema in a theatre caravan will be on the Promenade in Aberystwyth for three Saturdays this summer.
Staff from Ceredigion Museum, together with the Friends of Ceredigion Museum, will be hosting a series of free entertaining events in and around the theatre caravan on July 28, August 4, and August 11 between 12pm and 4pm.
Sarah Morton, the Events Organiser for Ceredigion Museum said, “We have a series of short local films from the National Film and Screen Archive which links to our summer exhibition relating to the seaside at the museum, in the old Coliseum Theatre. The two minute films show people on the beach and promenade in Aberystwyth as well as Y Borth. We will also have singing from the Showtime Singers to add to the entertainment.
“We will be situated in and near the bandstand and hope to be able to bring some of the traditions of a typical coastal break back to life.”
Besides the theatre caravan, there will be a Guess-the-Object held in the bandstand with museum staff to aid in identifying the mystery objects.
For more details about the caravan and the entertainment, contact Sarah Morton at Ceredigion Museum on 01970 633088
Surprise presentation for retiring cook
AFTER feeding hundreds of children in her role as cook at Ysgol Eglwyswrw for the past 40 years, Mrs Anona Williams is finally hanging up her apron. But there was a shock in store for Mrs Williams when she arrived at the school for one of her last days at work on Tuesday (Jul 17).
Cameras from the S4C magazine programme, Heno, were present to capture her receiving a special award from music conductor and presenter, Alwyn Humphreys.
She started at her post in 1978 and during that time has fed three generations including her own niece and nephew and great-niece and great-nephew.
Headteacher, Edryd Eynon, said Mrs Williams would be sadly missed.
“We will miss her delicious meals and her caring nature,” he said.
“She spoils all the children and is like a grandmother to them. Her contribution to the school is priceless.
“She ran the breakfast and the Cook It clubs and ensured all pupils had an exciting experiences working with food and preparing many delicious recipes.
“Every sports day she would prepare and donate coffee, tea and her famous scones and all the money she raised would be given to school funds. She did this for 40 years.
“Mrs Williams will be sadly missed at Ysgol Eglwyswrw not only for her delicious food – especially her pizza and coleslaw – but also for her caring and loving character. We wish her all the best for the future.”
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