Connect with us
Advertisement
Advertisement

News

​​National Library of Wales ‘Go Yellow’ for good cause

Published

on

​THE NATIONAL LIBRARY OF WALES recently had the honour of raising awareness of a well-known medical condition by ‘going yellow’.

In honour of Spina Bifida and Hydrocephalus Awareness Week (Oct 16-20) and World Spina Bifida and Hydrocephalus Day (Oct 25), The National Library of Wales was one of eight venues along with Cardiff City Hall and Leeds Arena to help raise awareness in a very unique way​.​

In order to help make ‘hidden’ disabilities more visible, The National Library and the public were encouraged by the charity Shine to ‘Go Yellow’ in order to spread the word.

Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus.

The charity is currently calling for better access to health and social services for people with spina bifida and hydrocephalus, both complex conditions.

Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues.

Working together throughout England, Wales and Northern Irelan, Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff.

Shine’s new corporate plan aims to ensure early intervention and support, access to better care and services, improved lifestyle and choices, campaigning and research into prevention and quality information and support.
The charity argue that there are too few specialist clinics, and those that exist are under threat.

Being able to see the specialists you need in one go saves families stress, travel and cost, and leads to better health and wellbeing for individuals living with spina bifida and /or hydrocephalus.

Shine CEO and Director for Wales, Kate Steele, whose late father was from Boncath, said: “It means so much to know that the National Library is lighting up this week, with other venues around the UK, to help raise awareness of spina bifida and hydrocephalus.

“These complex, life threatening and ‘hidden’ conditions often go together and require hospital stays, surgery and checkups.

“We are determined to do so much more to raise awareness and support for people affected, which is why we have launched our new plan.”

Spina bifida and hydrocephalus are life threatening conditions, known as ‘neural tube defects’, which can affect a child’s development, motor skills, and ability to cope with everyday life.

This can have a huge impact on the whole family. Many children with spina bifida also have hydrocephalus, which can also occur later in life, and experience many operations and complications.

Taking folic acid three months before conception until the fourth month of pregnancy can reduce the risk of a baby developing neural tube defects.

Continue Reading
Click to comment

Leave a Reply

Your email address will not be published. Required fields are marked *

News

New Quay RNLI lifeboat crew trains with lifeguards

Published

on

NEW QUAY lifeboat station hosted a special training evening with the lifeboat crew and Ceredigion’s RNLI lifeguards last week.

Pete Yates, one of New Quay RNLI’s inshore lifeboat helms, worked closely with Ceredigion lifeguard supervisor, Tirion Dowsett, to plan scenarios for the teams to practice working together in casualty care situations.

A large scale scenario included four casualties to be dealt with by the inshore lifeboat crew and two lifeguard teams on a nearby beach, whilst a third lifeguard team and lifeboat crew members dealt with a separate scenario at the lifeboat station.

Pete said: “It was a great evening of training. We had 9 lifeguards and 13 lifeboat crew in attendance.

“The main scenario included casualties suffering from hypothermia and propeller injuries. A second scenario involved a mechanic suffering head injuries in the forepeak of the all-weather lifeboat and requiring extraction on a stretcher.

“On completion of these scenarios we all gathered back at the station where one of our senior crew members sprung a great act at being a diabetic having a hypo, and being suitably angry and aggressive.”

Roger Couch, New Quay RNLI’s Lifeboat Operations Manager, added: “It was great for our lifeboat crew members to work with the lifeguards as it builds a deeper understanding of each other’s roles and encourages teamwork between us. This is of great benefit when dealing with real life casualty care situations.”

Continue Reading

News

Coastguard rescues dog stuck on cliffs

Published

on

LAST TUESDAY (Aug 27), New Quay RNLI’s inshore D-class lifeboat, Audrey LJ, was tasked by Milford Haven Coastguard to assist the Coastguard with a dog stuck on the cliffs near New Quay.

The volunteer crew launched the inshore lifeboat at 1.50pm with four crew members on board and made their way south down the coast.

Brett Stones, New Quay RNLI’s helm said: “We located the dog on the cliffs by Castell Bach, near Cwmtydu. We stood by while the Coastguard team caught the animal. The dog was unharmed and safe with the Coastguard so we were stood down.

“However, while returning to station we were then tasked to a small vessel with engine failure. We towed the stricken boat with three people on board back to New Quay. We rehoused the inshore lifeboat and it was ready for service by 2.40pm.”

Continue Reading

featured

New maintenance Lorries cut carbon emissions

Published

on

The Ground Maintenance Team has purchased three new lorries to support ground maintenance services in Ceredigion.

The new lorries will move Ceredigion County Council’s Ground Maintenance Service’s equipment to and from the grounds that they look after. The lorries will also take cut grass away for composting. This provides the most efficient way of maintaining the areas that the team is responsible for.

Councillor Dafydd Edwards is the Cabinet member responsible for Highways and Environmental Services together with Housing. He said: “The new vehicles replace ones which had provided excellent service for almost 20 years. They are fitted with Euro 6 engines which are considerably more efficient and better for the environment.”

The Grounds Maintenance Team is also incrementally introducing electric-powered mowers, blowers, hedge cutters and strimmers into its fleet. This equipment is better for the environment, is easier to use and causes less noise and vibration.

The new lorries support Ceredigion County Council’s commitment to be a net-zero carbon council by 2030.

Continue Reading

Popular This Week