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​​National Library of Wales ‘Go Yellow’ for good cause

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​THE NATIONAL LIBRARY OF WALES recently had the honour of raising awareness of a well-known medical condition by ‘going yellow’.

In honour of Spina Bifida and Hydrocephalus Awareness Week (Oct 16-20) and World Spina Bifida and Hydrocephalus Day (Oct 25), The National Library of Wales was one of eight venues along with Cardiff City Hall and Leeds Arena to help raise awareness in a very unique way​.​

In order to help make ‘hidden’ disabilities more visible, The National Library and the public were encouraged by the charity Shine to ‘Go Yellow’ in order to spread the word.

Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus.

The charity is currently calling for better access to health and social services for people with spina bifida and hydrocephalus, both complex conditions.

Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues.

Working together throughout England, Wales and Northern Irelan, Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff.

Shine’s new corporate plan aims to ensure early intervention and support, access to better care and services, improved lifestyle and choices, campaigning and research into prevention and quality information and support.
The charity argue that there are too few specialist clinics, and those that exist are under threat.

Being able to see the specialists you need in one go saves families stress, travel and cost, and leads to better health and wellbeing for individuals living with spina bifida and /or hydrocephalus.

Shine CEO and Director for Wales, Kate Steele, whose late father was from Boncath, said: “It means so much to know that the National Library is lighting up this week, with other venues around the UK, to help raise awareness of spina bifida and hydrocephalus.

“These complex, life threatening and ‘hidden’ conditions often go together and require hospital stays, surgery and checkups.

“We are determined to do so much more to raise awareness and support for people affected, which is why we have launched our new plan.”

Spina bifida and hydrocephalus are life threatening conditions, known as ‘neural tube defects’, which can affect a child’s development, motor skills, and ability to cope with everyday life.

This can have a huge impact on the whole family. Many children with spina bifida also have hydrocephalus, which can also occur later in life, and experience many operations and complications.

Taking folic acid three months before conception until the fourth month of pregnancy can reduce the risk of a baby developing neural tube defects.

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Free parking in Ceredigion

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Car parking will be free in all Ceredigion County Council operated Pay and Display car parks on the three Saturdays before Christmas this year.

Parking charges at council operated Pay and Display car parks will be waived on December 7, 14 and 21 2019.

Rhodri Llwyd is Ceredigion County Council’s Corporate Lead Officer responsible for Highways and Environmental Services. He said. “Small businesses will be competing against online businesses for trade this Christmas. We want to do what we can to support Ceredigion businesses at this important time of year. We hope this step encourages more of us to shop locally this Christmas and enjoy what fantastic Ceredigion businesses have to offer.”

This decision contributes towards one of the council’s corporate priorities of boosting the economy.

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Ysgol Bro Pedr raise funds for life saving machine

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PUPILS at Ysgol Bro Pedr have raised enough money to buy a defibrillator machine for the school.

The idea came after 15 Year 11 pupils achieved their Level 3 Emergency First Aid Qualification with Ceredigion Youth Service. Pupils felt that it was incredibly important that they and others at the school had the skills, knowledge and equipment to use in an emergency.

Mrs Caryl Jones and pupils raised an outstanding £1,150 through organising a bake sale at the school on 28 March 2019. The school extends their thanks to Lampeter businesses ‘Oh My Cod’ and ‘Y Becws’ for their kind contribution towards the sale.

Guto Crompton, School Based Youth Worker said: “Although first aid is not a mandatory part of the school curriculum in Wales, young people at Ysgol Bro Pedr felt that it should be something that all pupils knew about. This would help them to know what to do in an emergency, whether that be in the school or out in the community. Pupils worked hard to achieve their First Aid qualification which covered aspect such as CPR, casualty management and the use of a defibrillator.”

The defibrillator machine will be placed in the school reception.

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It’s not too late: Ceredigion residents still have time to register to vote

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“CEREDIGION residents still have time to register to vote in the General Election on 12 December,” said the council’s Chief Executive and Acting Returning Officer, Eifion Evans.

Residents still have time to register to vote and to arrange postal or proxy votes if they want to do so. The deadline to register to vote is midnight on November 26. The deadline to register for a postal vote is 5pm on November 26 and the deadline to register for a proxy vote is 5pm on December 4.

Mr Evans continued, “Some residents may want to register for postal vote or a proxy vote. This could help people avoid possible wintry conditions of a December election, or young people who have moved out of county to study but still want to vote in Ceredigion.”

Residents can register to vote by using this link: https://www.gov.uk/register-to-vote or by calling the council’s Electoral Services Team on 01545 570 881.

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